Jaxon Braden was born on October 28th, 2016 in Oklahoma City, Oklahoma, two hours away from home. He spent the first week of his life in the NICU in Oklahoma City, having been diagnosed with Tetralogy of Fallot, with moderate pulmonary stenosis, an additional ASD and a right-sided aortic arch. Tetralogy of Fallot is a Congenital Heart Defect comprised of 4 separate defects: Ventricular Septal Defect, Pulmonary Stenosis, Right Ventricular Hypertrophy and Overriding Aorta.
We then transferred all of Jaxon’s heart care to Children’s Mercy Hospital in Kansas City, Missouri. The first 4 ½ months of Jaxon’s life were spent travelling back and forth to Kansas City to see his cardiologist, trying to prevent Jaxon from coming into contact with germs, (yeah, right!), watching for signs of “Tet Spells”, all while knowing the functioning of Jaxon’s heart was decreasing. “Tet Spells” are cyanotic episodes caused by a rapid drop in the amount of oxygen in the blood. On March 14, 2017, at 4 ½ months old, Jaxon’s heart was ready for repair. His surgeon placed a transannular patch over the VSD, thus giving Jaxon’s heart two completely separate functioning chambers for the first time in his life. The surgeon was also able to widen and spare Jaxon’s pulmonary valve which prevented the need for a replacement. Jaxon went through surgery well and spent some time in the hospital after surgery. He is now thriving and doing well but will continue to be followed closely by his cardiologist. Our hope is that his pulmonary valve will grow as he grows and his heart will not require future surgeries.